Thursday 20 January 2011

20th January 2011

Hiya,
after a horrible weekend, especially Tuesday, Tuesday night Steven slept a full nights sleep. He was calm all day Wednesday and had a few short sleeps. At one point we covered him with a blanket, and he actually said the words "one more", well, we were just shocked, and thought, is this yet another turn-around. His medication has been doubled, he had almost 30 pills Wednesday, but......Wednesday night, back to normal, another bad night for him and Paul. Calming words of encouragement are of no use. Agitated, and with repeated calls for the nurses all night, right up until 6.30am when he finally went to sleep.
I took him to physio' fast asleep with yet another story of the night's events for the doctors.
There are people here of all ages, from babes in arms to senior citizens, all have all manner of disabilities, from all manner of causes. Without exception, all of them, at least 40 that we see, are all calm and indeed in most cases happy. Some are totally unaware of what's happening to them. Most are aware and are adapting or recovering. Steven seems to be aware of what's happened to him, and cannot do anything about it, and is frightened, when he comes out of physio', he is in a state of fear. The doctors cannot explain it, other than Steven is a different case to the others. In the relatively short time of being here we've already seen people move from wheelchairs to walking frames, or from walking frames to walking sticks, so the place does remarkable work, we've seen improvements in Steven, the staff here know what they're doing. We have no complaint whatsoever, we just want Steven to sleep during the night, so that we can help him during the daytime with is "studies".
The removal of the tracheotomy has been postponed until next Wednesday.
Regarding my operation, the doctor here has told me, in view of what's happening, it would be best to wait as long as possible, or wait for excessive pain, necessitating an operation!!!
It will be good to get off this roller-coaster of emotions.
love
Terry

No comments:

Post a Comment