Hiya,
well, after a couple of reasonable days, Steven decided to go back to his agitated state. Saturday evening it started, with a bit of agitation, then he slept until 3.30am Sunday morning, and that was it. He just wouldn't settle. At one point he spelt out "can you wake up Paul" I said I couldn't wake him up (3.30am) and anyway I can do whatever Paul can do. He wanted Paul. So I asked why, and he spelt "cos hes my brother". He finally went to sleep at 8am. He was agitated most of Sunday, some sleep, but no "conversation". He is constantly hungry, even immediately after food, not really surprised with all the energy he's using. He has a new sign now, he rubs his belly when he's hungry, and puts his hands together like in prayer to mean please. He is coping well with the tracheotomy temporarily closed, and when I clean it, it's not so dirty. He has learnt to cough. He can lick his lips. His hearing seems to have improved (though he doesn't do what we tell him!!;-) ) He has amazing intelligence, all it needs now is the co-ordination between mind and body.
Sunday night another bad night for Paul, no sleep at all despite extra medication, so Steven won't be a lot of use in the physio' today, we'll see.
love
Terry
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