Hiya,
a good day Tuesday where he was responsive to questions and was
calm, that is until evening. Another bad night for Paul. Steven was
pulling off his sheets, and generally being uncontrollable. At about
2am Steven spelt out to Paul, "papa" and pointing to the ceiling. Paul
went through many possibilities for papa, from me, to late grandads,
the pope and even God, but got no answer, confused or what. Steven has
been fairly good today, Wednesday, but on his "walk" he spelt
"priest", again he wouldn't elaborate, confused or what. Steven now
has a different brace on his right arm to help straighten it, he
doesn't like it. He also has a brace on his left hand, now not only
doesn't he like it, neither do we, at a time when he's beginning to
animate, he has a brace on him!!!!!. We'll do what the doctors say,
but Steven will be given the chance to "talk" to us, that's just as
important as far as we're concerned. Steven has also got an infection
in his feeding tube, that may be the cause of his restlessness, let's
hope treatment helps.
There's a report in one of our local free papers about
fundraising for Steven. They make a crucial error in the report.
Steven IS STILL IN a coma, despite all his activities, we can't
understand it, but that's it. And what people must understand is that
Steven could stay in any stage of coma, but we are optimistic that
he'll continue to improve.
love
Terry
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